Thursday, July 30, 2009

Here is the deal...

First, I am sorry that I did not update yesterday. During the day I caught up with one of my friends, the kids swam in the pool and had a great time! We then had a delicious dinner and I ran off to get a much needed massage! Then, I had a girls night!! I watched Twilight with two girlfriends! We were reliving our teen years! It felt good to have time to socialize. I have been on the go since school got out, first a class, then a visit from my mom, my sister Mary and her kids, then a trip home to Brockport for Mama K's birthday party, then back here for the tests! Whew, I feel like summer is finally here, not just in terms of the weather but things are finally slowing down! Soon, I'll be sitting up my classroom! ugh!!!!

I guess I was sort of avoiding a full update because I wanted the news to be different. When I found out I could have an octreotide scan I was excited because it was supposed to show if the cancer had spread anywhere else in my body. I was excited because I wanted to be told that it had not spread and that they knew that for sure because the scan was proof. One of the most frustrating things about all of this has been the fact that I had been going to the doctor for 5 years trying to figure out what was wrong with me. Now that I know, I want to know what the carcinoid is doing inside me, where it is at all times. The scan was supposed to do that for me.

Well, no one ever told me that the scan does not work for all people. The injection I had was supposed to bond with the cancer cells in my body but that didn't happen. We already knew from when I had my surgery that I have 6 tumors on my liver. The CT scan I had on Friday confirmed that. Those tumors did not show up on the octreotide scan therefore they know that the scan did not work for me.

The CT scan showed that the 6 tumors have not grown in size. That is good news because it means that the treatments are working for me. I will continue to go to Dana Farber every month for blood tests. This is one way my oncologist will monitor my progress. Currently my cancer markers have gone down which means the cancer is "sleeping" and my liver function is now back to normal! I will also continue to get a shot each month as well as a CT scan every six months to keep an eye on those tumors.

I think that covers all my new medical news. I am doing my best to stay positive and I think I am doing a good job. I can go a whole day without thinking the word cancer. It wasn't so long ago that that word popped into my head every five minutes. I have too much to live for to let it get me. I do get down sometimes, which I know is normal. However, I have so many wonderful, positive and uplifting people in my life to turn to in those times. I am so blessed! Thank you, thank you everyone everything! The positive thoughts, the prayers, the listening ears, the checking in, the time, the calls, the e-mails, reading the blog, the shoulder to cry on, the company, the laughs, the hugs, the cards, the notes-the list of gifts I am thankful for goes on and on! So many people have been there for me in so many different ways. I am so grateful and it all means the world to me. I just really want everyone to know. Much love, Theresa

5 comments:

  1. Thanks for the update. I'm glad the cancer is now "sleeping". Here's to it never waking up!

    We love you and will talk to you soon!

    Dan, Jenny, & Mia

    ReplyDelete
  2. Hey Theresa,
    Lyn L. has been keeping me posted on what's up with you. I forgot about this site and have been on Facebook searching like a fool. Sorry the news you got wasn't exactly what you were expecting, but the sleeping part and no growth is something to hang onto. I continue to think of you often and remember you in prayers and good karma.
    I'll talk to you at school.....school....yuck...summer is too short.
    .....a big hello to Kaeli
    Lovely

    ReplyDelete
  3. Theresa,
    Hey Baby!! Glad I wasn't too behind on your updates, because although you are thought of daily, I was not CHECKING on you daily. Concentrate on what you DO know. Happy Birthday to Kurt and hugs to you all!!! We move next week!!
    Love, Liz

    ReplyDelete
  4. Hi Sweetie! I am sorry to hear that the scan didn't work for you, but happy to hear that the CT scan showed that the tumors have not grown!! yeah! That is good news Theresa!!

    Good for you sweetheart enjoying your family and friends! Hope you can relax and enjoy these summer days before school starts up again dear!

    You are so strong and so amazing Theresa!

    Keeping you in my prayers and thoughts dear!

    Tons of love!!!!

    suzanne

    ReplyDelete
  5. Theresa - a big hello from the NY Sperandios....just catching up on your update from a few weeks ago. It sounds like the roller coaster - some discouraging news but then some great news that makes you want to throw those arms in the air and scream (a good scream - ya know - like on a real roller coaster). September is around the corner but that doesn't mean summer is over!!! All our love, mark & joan

    ReplyDelete